ALS Family Support

ALS Moves Fast. We Help You Stay Ahead of It.

When an ALS diagnosis enters your family, the weight of it lands on everyone, and the practical demands start almost immediately. Equipment to source, insurance to fight, conversations to have that no one feels ready for. Ellipses handles the logistics and provides the emotional support so your energy goes where it matters most: your time together.

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Serving ALS families in North Carolina and nationwide.

The ALS Dilemma

The healthcare system wasn't built for the pace of this disease. We were.

ALS requires a level of coordination that most families have never had to manage before, and the standard healthcare system moves too slowly to keep up with it. Equipment approvals take weeks. Insurance appeals take months. Meanwhile, the disease keeps progressing. We step into that gap and work at the speed ALS actually requires.

The Clinical Gap

"No one told us what to do at home."

"The clinic gave us the diagnosis, but no one told us what to do at home when things change. Who helps us manage that?"

The Ellipses Bridge

Proactive Care Coordination

We work ahead of the disease, not behind it, making sure your home care team and clinical providers are prepared for the next stage before it arrives.

The Logistical Gap

"Insurance keeps saying no."

"We need a power chair, a ramp, and speech technology. The insurance company keeps saying no and I don't have time for this."

The Ellipses Bridge

Equipment & Benefits Advocacy

We know the insurance and grant landscape for ALS specifically. We fight for the equipment and home modifications your family needs, and we know where to find funding when insurance falls short.

The Emotional Gap

"I'm grieving someone who is still here."

"I'm running a medical facility in my own home. And I'm supposed to be present for all of it."

The Ellipses Bridge

Caregiver Support

We take the administrative weight off your shoulders, insurance calls, FMLA paperwork, equipment coordination, so you can return to being a spouse, a child, a parent. We also connect you with therapeutic support for the emotional challenges that can’t simply be delegated.

The ALS Roadmap

Support That Evolves with You

ALS has distinct stages, and what a family needs at diagnosis is very different from what they need a year in, or at end of life. Our support is built to meet each stage directly, with the right combination of coordination, therapy, and caregiver support at every point.

Stage 1 / Early Stage
The Pivot
Focus: Building the clinical team, understanding the landscape, and beginning the hardest conversations.
Plan / Heal

Multidisciplinary Clinic Coordination

We facilitate connections with specialized ALS clinics at Duke Health and UNC and help you make the most of every appointment with the full clinical team: neurologist, respiratory therapist, speech-language pathologist, and social worker.

Resource Mapping Before the Crisis

Most families find out what's available only when they desperately need it. We map the full ALS resource landscape early, the ALS Association, local equipment loan programs, grant funding, so you're not searching in a panic.

Processing the Diagnosis

An ALS diagnosis is one of the hardest things a family can receive. We connect family members with specialized therapists who understand anticipatory grief and the particular weight of this disease, not to fix what can't be fixed, but to make sure no one is carrying it alone.

Stage 2 / Middle Stage
The Adaptation
Focus: Mobility, technology, financial advocacy, and keeping daily life functional.
Plan / Grow

Equipment Sourcing and Coordination

Power mobility, Hoyer lifts, speech-generating devices: these need to be in place before they become emergencies, not after. We oversee the sourcing, insurance advocacy, and coordination so the right equipment arrives in time.

Financial and Legal Advocacy

Social Security Disability application support, FMLA, long-term care insurance claims: we handle the documentation and the calls. These processes are complex and time-sensitive, and most families are managing them while also providing full-time care.

In-Home Care Team

When the level of care needed at home increases, we source and vet in-home care providers, and if necessary, train on the specific challenges of ALS: mobility protocols, communication needs, and the emotional reality of this work.

Sustaining the Caregiver

Middle-stage ALS is often when caregiver exhaustion first becomes serious. We connect family members with coaches and therapists who specialize in helping caregivers build the routines and boundaries that make it possible to keep going.

Stage 3 / Advanced Stage
The Sustain
Focus: Dignity, and end-of-life care.
Plan / Heal

Dignity-Based Advocacy

We help families work through advanced care directives and hospice transitions, facilitating the conversations that need to happen and making sure your loved one's wishes are clearly documented and honored.

Support for the Caregiver

At this stage, the weight on the primary caregiver is unlike anything most people have ever experienced. We connect family members with therapists who understand what it means to be present for someone you love through the end of their life, to grieve while still showing up, to keep themselves intact while giving everything they have.

An Integrated Approach to ALS Support

Care coordination, therapy, and caregiver support, working together.
Plan

ALS Care Coordination

ALS care involves a large and constantly changing clinical team: neurologist, pulmonologist, speech-language pathologist, occupational therapist, respiratory therapist, palliative care, plus insurance companies, equipment vendors, and often the VA. None of them are talking to each other by default. We act as the central point of contact for all of it, keeping everyone aligned and moving at the pace the disease requires.

We also know the financial landscape. National ALS grants, disease-specific funding, VA benefits for veterans, we identify what's available and pursue it, reducing the financial burden of specialized equipment and care.

Heal

Therapy & Caregiver Support

ALS affects the whole family. The person with the diagnosis carries their own reality. The people who love them carry something different: anticipatory grief, the relentlessness of daily caregiving, the guilt of having needs of their own.

We connect family members with therapists who specialize in exactly this. The goal isn't to make the situation easier than it is. It's to make sure the people holding everything together have somewhere to put the weight of it, so they can keep holding it.

Local Expertise. National Advocacy.

North Carolina's ALS resources, plus the VA system. We know both.

The Research Triangle has strong ALS clinical resources. Getting to them, preparing for them, and integrating them with daily home life is a separate challenge. We facilitate appointment preparation at the ALS Multidisciplinary Clinics at Duke Health and UNC, and we connect you with regional ALS Association chapters and local equipment resources throughout the Triangle.

Veteran Families

Specialized VA Service Connection Experience

For veteran families, we bring specific experience with VA Service Connection for ALS. Veterans are statistically at higher risk for the disease, and the VA benefit and caregiver support landscape for ALS is more extensive than most families realize. We know how to access it.

For families outside the Triangle, we work nationwide. The VA advocacy piece in particular is not geography-dependent.

Why Ellipses?

01

We Work at the Speed ALS Requires

Most healthcare and insurance systems are not built for urgency. We are. We don't wait for callbacks or let paperwork sit. When the disease is progressing, we move accordingly.

02

No Conflicts of Interest

We work for your family, not for the equipment company, the clinic, or the insurance adjuster. Our recommendations are based entirely on what your family member needs. If something is right for them, we fight for it regardless of what the standard system will and won't approve.

03

We Stay for the Whole of It

ALS is not a short engagement. The families we work with need support from diagnosis through the end of life, and the nature of that support changes significantly along the way. We don't have a discharge timeline. We stay, and we adjust with you.

You Don't Have to Figure This Out While Also Doing All of It.

The families who call us are already managing more than any one person should have to manage. They don't need a brochure. They need someone who knows what to do next. That's what we're here for.

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No Commitment Required. Serving ALS families and veterans in Raleigh, NC and nationwide.